Featured

Five years…

Well it’s been a while…and in some respects much has changed since my last blog (leaving IBM after 13 years!) and in other ways things are the same. Today makes five years since Isabella was born sleeping, and the pain is still very much in my heart and head. Thursday would have also been Max’s fifth birthday if he hadn’t been born sleeping in April 2018.

This September has been particularly hard, because if either of them had lived, they would have been starting school. I’ve sat at my desk, which is by the school street window, and sobbed as I’ve seen the little reception children walked past, thinking that my sleeping babies should be with them. It’s so hard to explain, as that will be Isaac next year, and I am so excited for that stage of his life. But the pain doesn’t go and the thoughts of what might have been are still there.

As I said, I moved jobs and went to work for an ex IBMer at a company called Anaplan. This particular person did know what I’ve been through, and knows that there are still times when I struggle, especially with certain triggers (even people with the same names as my two sleeping babies still feels like a stab in the heart when I hear them). She has been very supportive and given me the space I need when I’ve needed it. When I joined I did think about not being open about it and starting afresh, as I was adding new colleagues on LinkedIn, I was thinking maybe I won’t do any posts about baby loss and not share my sponsorship links or memories of the Rebecca Room etc, but then I thought why shy away from it. It will always been part of me, part of the fabric that is my life history, and still affects my life. I am not ashamed of my continued grief and it’s never going away, so I am just going to roll with it. A friend recently shared this on her Facebook, and I think it’s so true. In general I am learning to deal with reminders, and triggers etc, by just having cry, taking some deep breathes then looking at my children (or pictures of them) and realising that I am amazingly lucky to have them and that they are more than enough for me! But…the grief is still there.

Someone recently described to me the word their use for when talking about the date a baby is born sleeping, and they call it their angle day, which I think is lovely. As with Isabella, she died and was born on the same day, so I’ve never really felt I could call it her birthday, with Max he died in my tummy one night and was born the following morning. Even if you don’t believe in heaven, I still think angel day just brings a calmer and more peaceful image. I went to see them both today with this in my head, and it definitely made it easier.

As some of you know with September being a hideous month for me with these two dates, I decided to do a swim for SANDS. For those that don’t know the Stillbirth and Neo-natal Death Society provided the room that Max was born in and support in dealing with my grief after both losses. The challenge was meant to be swim five kilometres during September, but I decided to push myself to eight. If anyone could spare a few pennies for this awesome charity in Isabella’s and Max’s memory I would really appreciate it.

https://www.justgiving.com/page/becksbigswim?utm_term=MnyqMyEmE&fbclid=IwAR2o5DRpu4E0rJn2Zk4R5ufepBKqSx0DelxlmqFzz2lgVw8H3oJg8gD86gM_aem_Ablwet5LmWTehwahZZVPd2dcH475bXuK3EFAnQe61H1czRabhGZTJz_cy8KBkG8rxhI

That’s me for now, it might be a long time or a short time before I post again who knows!

Featured

Three years on…and still no easier

So it’s been six months since my last blog, and three years ago today since I lost Max. I really wish I was writing this blog to say “I am fixed!”. I wish I could say that I haven’t spent the last two weeks dreading this day, that I don’t shudder every time I hear the name Max, that I don’t think about how I should have a two and a half year old, that I don’t look at the age gap between Dylan and Isaac and wishing it was smaller, and that I no longer dread my birthday – knowing that the day after is the anniversary of Max’s death. Sadly, if I did say any of those things I would be lying. I just want to know when this will get easier, if anyone else has been through this, as the years pass, does the anniversary sometimes slip pass without you even thinking about it???

So it’s been six months since my last blog, and three years ago today since I lost Max. I really wish I was writing this blog to say I am fixed! I wish I could say that I haven’t spent the last two weeks dreading this day, that I don’t shudder every time I hear the name Max, that I don’t think about how I should have a two and a half year old, that I don’t look at the age gap between Dylan and Isaac and wishing it was smaller, and that I no longer dread my birthday – knowing that the day after is the anniversary of Max’s death, I don’t look at the forget-me-nots that appear at this time of year and fight back the tears. Sadly, if I did say any of those things I would be lying. I just want to know when this will get easier, if anyone else has been through this, as the years pass, does the anniversary sometimes slip pass without you even thinking about it?

Recently I decided to go through my phone and delete some of the 20,000 plus photos on there. They start in Summer 2015, pre kids, fun girls holidays, nights out, work trips etc – all of which seem a lifetime ago now. Then move to pregnancy photos of me with Dylan in my tummy from Autumn 2016, then hundreds of photos of Dylan’s first year in 2017, all of which were lovely to look through and remember so many happy times.

Then 2018 comes, the year I was dreading looking through. All start off ok, a picture from my birthday reminds me that I spent five nights in hospital bleeding, and that I begged the hospital staff to let me go home for the night so I could go to Pizza Express with Matt and Dylan (as I was due to be back in two days later for a scan). Happy and smiling at the camera, probably thinking I had been bleeding for a week and nothing happened, so surely I was ok, thinking hospital wouldn’t have let me go if it was that bad. Now, having read hospital notes, I know it was classed as a “threatened miscarriage”, and although the hospital didn’t say it, they may well have thought I was going home to lose the baby.

Then suddenly BAM a photo of the Forget Me Not baby loss suite at the Royal Surrey Coutny Hospital, where I gave birth to Max on the 16th April. I am not sure why I took the photo, or why I kept it, but just wanted to always be able to picture the room in which I held him in the little woolen woven basket.

I look through the photos of the next two weeks, and now I know I went back to normal lift too soon. We wanted to keep things normal for Dylan – had family days out (we took him to the Zoo, the beach etc), went back to work, visited friends etc. I know look at those photos knowing that the smile in them was fake, I wasn’t healed mentally or emotionally, even if physically the bleeding had stopped. I kept going through the photos of that time, I guess in some ways a self inflicted torture. I certainly shouldn’t have done this so close to the anniversary, but in some ways I wanted to make myself certain that we never let it effect Dylan. I’ve decided to give myself a break from doing it though for the next few weeks, as I know all too soon I will hit the photos from around September 2018, and know that’s when my heart broke for the second time with the loss of Isabella. I feel like there are photos of me pre loss, and post loss, I feel like something changed within me forever, having that level of pain and hurt.

I don’t know if the years passing will make it easier, all I know is that every April 16th, the date Max was born, I will walk to where Max’s ashes are scattered and tell him how loved he would have been, and that he is always in my heart.

In other brighter news, I had a smear test two weeks ago, and got the results this morning, all clear! Although I didn’t think there would be any problems, I always remember my dear friends Riggy’s battle with cervical cancer and know that cancer doesn’t care who it picks – it can get you any time, so you should always be prepared. Riggy was, and she kicked cancers arse!

I hope you are all surviving lockdown, that you are making happy memories with your families, and looking forward to a summer of meeting friends without fear, and possibly being able to hug your parents for the first time in over a year.

I promise more positive blog next time 🙂

Take care everyone.

P.S – I am not saying I am not happy now, I know how truly blessed I am, not only to have my rainbow baby, but to even be able to have had Dylan as well – as so so many women struggle to conceive. Just some days are easier than others.

Featured

Imprints….

So another year has passed (and crazily six months since the last time I posted on this blog) and I will be lighting another candle tonight to remember the two lovely little babies that aren’t part of our family. The years gone really quickly this time – surprising considering what a “unprecedented” one 2020 has been. Maybe the ten weeks of no nursery for Dylan and Matt being furloughed – allowing us some family time that we never imagined we would have – made it rush by. Although I have to admit those weeks had tough moments, and even with Dylan at school now my maternity leave feels far from “normal”.

I can’t believe that it’s been two years since we lost Isabella. I keep wondering whether I will ever “forget”. How many years it will be before I don’t feel sad on the 25th September (the day she was born) or the 27th September when Max was due. Will I always hate the last week of September? Or in a few years will those dates just pass by without me feeling heartbroken? Will I always feel a stab of pain when I meet another child named Max or Isabella? I think it’s just this time of year that, sadly all my losses are so close to Baby Loss Awareness Week and so there’s lots of stuff on social media, it just brings it all up.

On the day that was the anniversary of Isabella’s death Matthew and I went up to the woods where we spread her ashes. It’s odd as it makes me so sad to go there, but there’s also part of it that’s comforting – almost like we can be close to her, like she’s in the wind and trees around us when we are there.

I am hoping that once I’m back at work, and I know that I won’t be having another maternity leave that my mindset will change and that maybe the losses will be easier to process and less consuming. I think when they went back to work in 2018 after losing Max I was constantly thinking I wonder are we going to get pregnant again, when should we start trying, will I face problems etc and naively thinking it would not happen again. And then I lost Isabella and I spent my time again thinking are we ever going to get pregnant again – it’s too much of a risk etc. Then we lost her and I took ten weeks off work. So it basically felt like 2018 was so baby and loss focus, it’s almost like I lost a year of my life of thinking about anything else. This realisation makes me sad, as I should have been focusing on Dylan, but then I look at him and realise he’s not been effect, he’s just awesome and loves life.

Then throughout 2019 I kept thinking you’re gonna lose this baby too – luckily that didn’t happen. So basically the point of going over this is that when I go back to work in January 2021 I won’t have any of that. Because we are definitely done we wouldn’t put ourselves through it again, and are we’re very, very blessed to have our two little miracle boys. So I think work will feel different. I think I’ll feel like I can focus on my career again, as well as obviously focusing on my family, but luckily IBM has very flexible working so you can focus on career and family at the same time. And I am I’m hoping that that change will make a difference in how I process things.

I still think about Isaac’s birth all the time. And again, I’m hoping, as time passes, that I’ve stopped thinking about it in such negative ways. But the moment, even nearly eleven months on I still feel that I missed out on his birth experience. I feel just heartbroken that neither of us were there when he was actually born. I wonder if I will ever stop feeling that way? Having four births and no positive I’ve birth experiences, I doubt I will.

On to more positive things… I am very, very proud to have been part of a team of amazing women who have raised money for SANDS again this year. Sadly we had to cancel the ball due to coronavirus, but luckily we have some wonderful family and friends who helped raise money by buying tickets for a virtual raffle. We raised a whopping total of £1440, which I’m astonished at because it’s very similar amount to the raffle from last year – but last year we sold a lot of tickets on the night. I want to say a big shout out now to all the very lovely people and businesses that gave raffle prizes. Because without them none of it would have been possible. It’s been heart warming that despite many of the businesses having a tough year they are still being so generous. And of course thank you to all you wonderful people for buying tickets!!

Dylan has started school and is extremely happy there. He’s made some new friends and has some fantastic friends from nursery with him, so I’m really glad that that has gone so smoothly. But even with that, I sit here whilst writing this blog and think about the what ifs. If Max or Isabella had survived I wouldn’t be at home now on maternity leave and Dylan would be in after school club three day whilst I worked (which he will have to be in January, apart from Tuesdays with Granny and Friday afternoons with me). But as it turned out, I’ve been here the first term that Dylan has been at school, and actually been really nice because it felt like he has been able to ease in, and I get extra time with him. So maybe every cloud does have a silver lining, however small the lining and however giant the cloud was!

So I really on this Wave of Light night, it was just a quick blog to say where I’m at, but also to send many virtual hugs to those that are remembering babies tonight and lighting their candles. And even if you haven’t had the misfortune of losing a baby, I know there are many other struggles that come with trying to conceive so thinking of you guys too – as I am sure this is horrendous too. If you haven’t experience loss, maybe you know someone that has, so perhaps light a candle for them.

Until next time, whenever that may be, take care of yourselves xxx

Featured

Wandering Wonderings and Rambling Rambles

I am using a new app to write this blog where you speak and it turns into text. Hopefully it’s going to work as I’m trying to keep up the blogging whilst looking after/failing to home school a four year old, constantly feeding a four month old, whilst being majorly sleep deprived, during the Corona Virus lockdown of spring 2020.

I’m currently just walking back from my daily “allowed exercise” through the Chawton Park woods and trying to get Isaac to sleep in the sling as he refuses to sleep in the cot and I’m not supposed to drive anywhere unless it’s essential. I would argue napping a baby during his four month sleep regression is essential, but not sure that would really make the cut. I just went to visit the place where we scattered Max and Isabella’s ashes. It’s the first time I’ve had a chance to get up here since Isaac was born. And in a weird way, I wanted to go and introduce Isaac to Max and Isabella – that sounds so strange when I say it out loud (remember I am walking and dictating this blog into my phone). I think though, unless you’ve been in a similar situation, you may not be able to understand it. Issac to me, is their brother. They are his big sister and big brother, I know you could say Isaac wouldn’t be here if Max had survived, or if Isabella had survived, which is factually correct. But as I’ve explained before, in my head I have given birth four times, I have four children, just that sadly two of them are not on this earth with me.

Anyway, parenting through Covid 19 was meant to be the theme of this blog. This was certainly not how I was expecting to be spending my maternity year. I was expecting to spend it drinking lattes and eating cake, having lunches with friends who were either on maternity leave or “stay at home mums”, who by the way I haven’t absolute new found extreme respect for. I don’t know how anybody does it looking after pre school children (and younger), full time at home. I’ve been doing it for two ish weeks, granted with a newborn as well, but other people do that too and smash it (I am talking about you Emma T). I’m shattered emotionally, physically and mentally. So, this is me, taking all my hats off to stay at home parents – I shouldn’t say just mums as there stay at home dads too. Anyway, back to maternity leave, I thought I would be in the gym with Isaac in crèche for an hour a few times a week, I’d be spending my Tuesdays volunteering at NCT Happy Days. My Wednesday’s would be doing an amazing baby group called Tots Play which is led by a friend called Georgie – we did the baby development course before this all started, and had just started doing the Discovery Tots classes. I was loving my maternity leave and feeling the most relaxed and settled I had been in two years.

Baby Development with Tots Play

See this is what’s so weird about life at the moment – a couple walking just moved paths so they could observe the two meter social distancing rule – we used to walk past people perhaps stop and chat, and now just keep walking past them, hide in a bush etc.

I’m worried about my parents, even talking about it now, as I walk makes me want to cry. I cry every time I see them – clarification when I see them I’m not going around to their house as that’s against the COVID rules. I mean from a distance or on video. I’ve not seen them properly for over three weeks, occasionally we get each other shopping and leave it on the doorstep, knock on the door, stand well back and say hello. I am finding absolutely heart wrenching – can’t handle it at all and now I’m crying in the woods, all on my own with only a tree to hug. I haven’t seen my sister either – and she is my best friend – I can’t handle not seeing her even if it was just in the nursery car park during school drop off, just talking through it now has made me realise how lucky I am to live close to my family, and see them so often. Now I’d never ever want it to change.

The reason I’m worried about my parents is my mum has asthma is 69, and dad, as many of you know, had a stroke many years ago, but is still not in hundred percent health. It doesn’t seem like this virus knows any bounds anyway – a 13 year old boy died who apparently had no underlying conditions, a five year old boy died at the weekend – he did have underlying conditions but ****, five years old, and taken by a virus, my heart absolutely breaks for his family.

We are trying to play by the rules as much as we possibly can. We haven’t seen anyone else other than the four of us as haven’t been anywhere. We take the exercise we are allowed daily from our house and we’ve been lucky and getting a few home grocery deliveries, where we need to stock up my sister or parents have had deliveries and we are all doing bits for each other – we antibacterial wipe things as soon as they come in the house etc.

Social Distancing in woods building a stick den

The only other person I’ve seen outside of my house was when I saw a nurse when Isaac had to have his four months jabs. It was just scary and super surreal – you go into the health centre and get asked to put on a mask and sanitise hands, there was someone manning the door and everywhere was eerily quiet. The nurse had a mask on too and was so lovely and calm – it was one of those things you can’t avoid though, I believe in immunisation so Isaac had to go. So as you can imagine being kept in the house with a cranky four month old post jabs isn’t easy (plus an even crankier four year old who wants to see his friends). Also said four month old is currently going through a sleep regression and something called the “fourth leap” – which is a mental developmental stage where they can be really fussy and clingy etc. The stress levels were certainly very high last week!

Jabs appointment featuring face mask

I shouldn’t moan because I know other people have it a lot harder than I do. Matt has now been furloughed as well. I’m trying to think of its blessing rather than worrying about the difference in money (as obviously I’m on heavily reduced pay because I’m on maternity leave). But it means he is now around how to help “school” Dylan and quite honestly, I was seriously starting to worry about my mental health – so it has come as relief. I was crying every single day, I felt like I was letting both boys down. I was getting angry at Dylan because I was too tired and massively overwhelmed by the fact that he may not be going to nursery and home schooling on my own for possibly 12 weeks – probably even longer. Also I felt that it was hampering my bonding time with Issac as well, because it felt like the only time I could give him was really just trying to feed him before Dylan would call for me to go and play with him, but at least Matt can help now. I am still worried about my mental health – I think everyone at the moment is focusing on physical health, understandably so, but the mental health of people is also drastically important. For people who are losing their businesses, people who have their jobs, people have lost relatives, that’s going to have a big impact for years and years and years to come on mental health too. It’s just the physical side of it seems to be the tip of the iceberg of what is going to happen because of this outbreak.

I worry for my friends who work on the NHS frontline, but I’m trying to keep in contact with them as much as I can. I feel incredibly sad for my pregnant friends, must be ultra worrying for them, especially if they’re not going to be able to introduce the new arrival to friends and family – that is something that’s a lovely part of welcoming a new baby, to the world.

I feel like it’s something that we’ll look back on in years come when we’re old and grey and say “I remember the outbreak of 2020”. When we would #clapforNHS every Thursday night, when we put rainbows in our windows, did family video calls, when we would listen to a 5pm political broadcast every night, when our prime minister was in the ICU with the virus (whether you like him or not, I think everyone wants to see him pull through, he does love his country in his own way).

I am really praying that I’ll be able to say that I didn’t lose anyone I loved to it. The one good thing is that my boys will not remember any of it, and I am grateful for the extra unexpected time we get to spend as a family before Dylan goes to school. I do worry about the fact that we’ve been three years getting Dylan into a structure – because he needs structure, he is highly active and can be highly emotional (like I am sure most four year old boys can be). And at the moment very attached to me- will not let me go anywhere in the house without following me around even though I just got stairs go to the loo, he says “I love you Mummy I want to come with you and want to be with you every single minute”. First it was cute but now I worry about how he’s going to adapt to going to school, I am really hoping nursery will reopen by August so he’ll get back into a little bit of a rhythm of things – back to a more formal educational setting, wearing a uniform, back to some lessons etc – if not, September is going to be incredibly tough. I think because all of this I’m going to try and stay off work until January unpaid, because he’ll need the support during his first term, but also because I want to be able to have some time after all of this with just me and Isaac, to try and repair a bit of the bond we were developing.

Home
Schooling as best I can

Anyway I am getting to the main road on my walk now so will stop rambling. I hope everyone is ok and will see you on the other side. And remember #stayhomesavelives.

Birth Notes, Books and Boobies

Featured

So it’s been a while since my last blog! I wanted to wait until I had gone through my listening service appointment until I blogged again, but that was a couple of weeks ago and been taking the time to sort my thoughts out around it.

A listening appointment is with a senior midwife where you are able to go through your notes line by line and ask questions. I had it after Dylan’s birth and it really helped me process everything, so had high hopes – unfortunately I was disappointed – not due to anything the hospital did wrong, but my expectations were unrealistic. In short, I thought the notes would be really detailed as they were with Dylan, but in reality the “birth” started at 18.50 when I got to ward and finished at 19.35 when he was out. They didn’t have time to observe every tiny detail. Basically I was on machine at 7.00, 7.05 everything normal with readings, 7.12 machine started going crazy so they tried to get me in different position as heart beat was saying 70 – half what it should be. Luckily there was a Dr free on the ward at that very moment who immediately came and examined me and made the call to do an emergency c section (I shuddered to think what might have happened if for some reason it took a while for a Dr to come and make that decision). Then at 7.19 a “category one” bleep was called – the worst one there came be which makes the surgical team come running, as well as the special care baby unit notified – clearly they assumed that little man was going to come out with some problems to overcome. I was in theatre by 7.24 being prepared, and 7.29 “knife to skin recorded”.. by 7.35 he was out and cord cut etc.

As you can see everything was rapid. His heartbeat did go back up in theatre, which made me ask “what if they had just waited”… as even if I could have had an epidural and Matt be present I would have felt better about the birth, but quite rightly the midwife said that if they had waited, I could be sitting there asking why they waited if my baby had died. She also emphasised that once they call a category one it’s rarely changed, and that they really only do emergency c sections under general in the absolute worst circumstances. The notes also said he came out “pink”.. and had no problems. I lost 1.7 litres of blood, so that’s why it took a while to get me back to recovery etc. So I did get some answers, but there are still things I will never know, like why he stopped moving, was it the cord causing problems or something with my placenta, how close we had come to losing him, what position he was in etc. I just have to accept that somethings will always remain unanswered and I shouldn’t dwell on them as we do have our little miracle safely here. But it’s just hard when I still think about it every day, not having a proper birth, neither of us being there etc. I just wish one of my four births had been a positive birth experience.

I have also been reading the follow up to “This is Going to Hurt” by Adam Kay, called “‘Twas the nightshift before Christmas”… (both excellent reads) – I am probably not meant to put photos on here but included Amazon links so you can buy the books to read the rest, so in theory free publicity. There are some pages that really hit home.

The first one reinforces my point in my last blog about following Count the Kicks and listening to your body, Isaac wouldn’t be here if I hadn’t….and I am glad that the staff at The Royal Surrey know the importance of following “a mother’s hunch”.

The second section that made me cry was around baby loss, so people may think losing babies at 17 and 12.5 weeks isn’t as much as a big deal as my blogs make out, but I still gave birth to them both, I named them both and I had a funeral for both. Adam rights very movingly about a couple losing their IVF baby… not just a “six weeker”. I had “normal” scans with both loses and it’s so hard to realise things can literally change over night. It’s natural to want answers and explanations – but we never got any.

Trying to be more positive… I recently had a wonderful conversation with someone who had tragically lost a child at 28 weeks, and she told me how they used to mark the date every year, friends and family would send cards etc – but the couple asked them to stop. The reason being she said was that her son that was born after the loss got upset by it. She advised not focussing on children that you have lost, yes talk to them about it if they ask, but the youngest child might come to think that they wouldn’t have been born if the children you lost had survived. Which ultimately for us is true, but I would never want Isaac to grow up feeling that. I do think this was good advice, I’ve kept all the scan photos and memories of my pregnancies with Isabella and Max, but will only show both boys if they ask.

Finally what has also taken up a lot of my time and headspace is the struggles we have been having on our breastfeeding journey. We discovered Isaac had a tongue tie – after I saw a lovely and very supportive breastfeeding consultant called Emily Taylor at a clinic in Bordon at the Forest Health Center (runs every Friday) – as I was in agony when feeding off my right hand boob. She also thought that his jaw was quite tight, so suggested some cranial therapy. It was great to have confirmation I wasn’t going mad and there was a reason I was in pain, so very grateful to Emily.

I got the tongue tie cut privately, as I couldn’t handle waiting 13 days to been seen by NHS. It did ease the pain, but sadly only for a few days, and it seems now the tongue has reattached so I’m currently deciding whether it’s worthwhile cutting again.

What has DEFINITELY helped is the cranial therapy we have had with Kate Rosati. So far I’ve had three sessions, and have a fourth booked in soon. It’s fascinating what Kate can tell by looking at how Isaac feeds as well as physical features. For instance, his forehead in one area is quite flat, so she thinks he was born back to back. Also, his jaw is tight and his chin locked down – causing a little ridge on his chin – and she thinks this might be where the cord was wrapped round. He also swipes a lot at the right side of his face, so that might be were his face was squashed into my pelvic area. Kate is so calming and knowledgable on breast feeding as well, and seeing her has made the feeding 100x more comfortable and meant we are able to continue on our journey, when I really was ready to give up.

I’ve decided to keep this blog going sporadically, talking about being a mum of boys and parenting after loss, so I hope you will stay with me, thanks for all the love and support so far xx

P.S photo of Isaac just because he’s so damn cute!

Featured

While you were sleeping…

Advanced warning, this blog is going to talk about my traumatic birth experience… if you can’t handle the following fact, then I suggest you don’t continue on…I was put to sleep under general aesthetic not knowing if I was going to wake up to my baby being dead or alive.

For those of you that are still with me,  get comfy, maybe with some tea – it’s going to be a long one! The most important thing I want you to take away from this is how important it is to listen to your body, that and having faith in the glorious NHS.

On Saturday 30th November, at around 4pm, I realised I couldn’t remember the last time I had felt the baby move. We had gone into town for the Santa run, and I had a sugary hot chocolate, which would normally make him go crazy in my tummy, but nothing had happened. So when we got home I had a lie down.. nothing, then a bath.. nothing. Throughout my pregnancy I had be diligently counting kicks, following the advise from the wonderful Kicks Count charity – https://www.kickscount.org.uk, who emphasise how important it is to monitor movements, and be aware of any changes in your babies normal pattern. Ultimately knowing this helped save Isaac’s life.

I came downstairs and insisted to Matt that we go to the hospital immediately. Something just didn’t feel right. Mum came round within about ten minutes to look after Dylan and put him to bed (I am sure she teleports somehow), and we headed to the hospital.

If Matt was unkind, I am sure he would have told me he thought I was being neurotic/OCD about it, but he’s not unkind, he is supportive and understands that I lived every day of the pregnancy expecting to bleed and lose another child. We got up the ward and luckily were seen incredibly quickly. They took us into a side room and I immediately started crying – it was the same room in which they told use that Max was going to die, having lost all my waters. I thought it was a sign. The midwife was very sweet and offered to move us to another room, but I just wanted to “get on with it”. I was put on the heart rate monitor and immediately there it was, happily beating away at 140 beat per minute – or so we thought. The sobs of relief came, but were short lived.

The midwife left the room and within minutes the machine started going crazy, Matt went out into the corridor to find her, as thought maybe it had come unhooked etc. Another midwife came in – Shona – to readjust the pads, but it wasn’t working, his heartbeat was going below 100 (something termed Bradycardia) and I am pretty sure it flashed up lowest at 63 BPM, there was definitely an 80. Then suddenly there was also a Dr in the room, who did an internal check to see whether I was actually in labour or at least dilated, I was not. By this point I was in a lot of pain, I thought it was contractions, it felt like he was twisting in my tummy.

Next thing I knew they said we were going through to “delivery”. I naively thought this meant they were going to break my waters, but then the reality became clear as I was rushed down a corridor, with Matt practically running behind us, as alarms were blaring and people were appearing left, right and center.  It was then I saw the door we were going through had a sign saying “theatre” – I was still confused at this point – they wouldn’t let Matt in, and I thought it was just because he needed to scrub before theatre and that I was having an epidural, all I remember is Matt calling “I love you Becky” before doors closed on him. They told me a little white lie and said he was getting changed when I begged for him to be let in.

By that point there were people everywhere, someone doing a cannula in each hand, someone putting towels across me, painting my tummy with weird dye, a catheter, oxygen mask, and being told to drink some horrible tasting liquid. I still didn’t really understand that I would be asleep for the birth of my baby. I was thinking, this is it, I am going to have yet another dead baby. Nature had played a cruel joke on us letting us get to over 37 weeks, and now I was going to lose my rainbow baby. The last thing I remember doing was screaming at poor Shona, “DON’T LET THIS BABY DIE!!!!!” over and over. I went to sleep not knowing whether he was alive or dead. Something that I will never ever get over. We were later told that Matt wasn’t allowed in the room because a) they don’t let husbands in as it takes up time to scrub etc and b) it’s thought to be too traumatic for the husband to see his wife being put to sleep and baby being born that way, but I still wish one of us had been there to see the little man being born.

Two hours later I woke up in a small dark room, where Matt had been all that time – Isaac having been given to him twenty minutes after we went into theatre (poor Matt – when I think about him being on his own in there not knowing what was happening with his wife or child makes my heart ache with sadness for him).  Bless him, Matt had done skin to skin with Isaac, and called my mum to let her know the baby had arrived safely. Mum then had to stay the night in our bed and look after Dylan for the next few days – luckily he adores his Granny and Grandpa. It’s still hard to come to terms with thought that my mum and dad knew my baby was alive before I did.

Apparently when I came round the first thing I did was start shouting about the radio being too loud (there was no radio). When I opened eyes properly, there he was being held up to me in a little red hat and a towel. I looked at Matt and said “is he alive?” (the red hat in my head signified danger/end as Royal Surrey use a traffic light system for hats for their new borns). Then they handed me my miracle.

I felt like I was in a weird dream. The pain I was in then showed me I was definitely NOT in a dream!! Unlike an epidural, where the pain relief is still present for a few hours after c section, with a general, there was no such relief sadly – which is one of the reasons why they only do it as a LAST resort. They gave me a morphine drip, but for some STUPID reason, I didn’t want to use it, I think I just wanted to be as compos mentis as possible, to be in control of my mind, to absorb what had happened.

They were monitoring me every two hours, as I had lost over 1.7 litres of blood, and there was talk of a transfusion. But they were both surprised and happy that I seemed “really well” given the amount I had lost, and my blood pressure and iron etc were all fine. The staff were very sweet and got a large black beanbag for Matt to try and sleep on next to me – although his legs still hung off the end. There were times during the next few hours where I lay in the darkness and thought I was in the same recovery room, like after we lost Isabella and I’d had a D&C after loss, but then suddenly Isaac would make a noise in the hospital cot, and I would remember that this time my baby was alive.

Within a couple of hours I was able to get Isaac to breastfeed, which I was so happy about, but then bubble burst slightly when they told me yet another side effect of a general was that it delays your milk coming in. He was so little (6lbs and then dropped to 5lb 6oz over the next 48 hours), and I just instantly felt like I wanted to protect and nurture him. It was hard though not being able to pick him up myself, but every time I moved my tummy hurt and I still had a catheter in, as well as two cannulas.

At about 7.30am (12 hours after he was born), at my request we were moved to a private room – I just had spent so much time on wards at that hospital in the previous year that I just couldn’t bear the thought of being on one again. I wanted the three of us to have some privacy, I needed the quiet to process what had happened. One of the Drs came in and said two things that will always stay with me. One was that we were lucky the little man wasn’t in SCBU given the circumstances of his birth (turns out he had the cord wrapped round his neck), and secondly that we were “moments away from the worst case scenario”. My blood ran cold when she said this. So many what if’s – what if we had dinner first before leaving, what if we had stayed to put Dylan to bed, what if mum had taken longer to come round to the house, and what if he had kicked just once? I know if he had kicked just once I would have not insisted on going to the hospital and just gone to bed.

The first full day (Sunday) went in a blur, various checks and all was going well.  Matt’s mum, dad and nan all came to visit us, and it was lovely for them to meet their latest grandson. Matt went home to catch up on some sleep and Isaac and I watched Netflix! (he would only sleep on me).

On Monday I was delighted that Wendy was able to take a break in her shift and visit us. It was so nice seeing her, she has been with me at every step of this journey. She is such an amazingly kind person, and I feel really really blessed to have her in my life now.  She will always be Isaac’s “aunty Wendy”.

Then jaundice hit! The first six hours under the lamp in the afternoon went well, and it didn’t seem to bother him. During this time we had a visit from the lovely Jacqui Tingle, she was brilliant – Isaac decided at that moment to be sick everywhere! She helped me clean it all up and has such a calming presence.

Matt went home to pick Dylan up, as we really wanted to keep things as normal as possible for him. My parents came to visit, Mum armed with various gifts for Isaac and me, and it was lovely hearing what Dylan had been up to for the last couple of days. Unfortunately the same calmness  under the light was not apparent for the second session of eight hours. He WOULD NOT settle. Poor like thing just wanted to feed or cuddle. There was an AMAZING transitional care nurse – called Sheena – who basically spent her entire shift with me trying various ways to settle him. At one point I was even just in my pants sitting in a chair with the blue light shining down on us whilst I fed Isaac – me covering my eyes with a sleep mask. At 4am I was at my wits end, but he was finally allowed out from under the light, the lovely Sheena took him for a couple of hours so I could get some much needed sleep.

On the Tuesday morning I saw a Dr and she said we could both go home. The relief was overwhelming. I just wanted to see Dylan, and let him meet his little brother.

I will be forever grateful to the midwifes, Drs and nurses at the RSCH. I can not fault the staff – they work so hard, such long hours, and never complain. I am sure I was a pain in the bum at various points, but they were always so kind. I am in NO DOUBT that it is due to their speed at getting Isaac out that saved his life. That at the work that Kicks Count do in making sure mums are aware of their babies movements.

As I said at the beginning, if any mums to be are reading this, LISTEN to your body, don’t worry about being neurotic or bothering people with questions etc, do what you have to do to keep your bump safe. If I hadn’t listened to my body, and trusted my instincts, Isaac would be another one of my babies to not take a breath, and another missing piece of the Owen family puzzle.

I would like to thank all my family and friends, especially my wonderful husband, my parents, my sister and my bestie Katy Pelling White –  who have really be my rocks during the journey for number two over the last two years. They have dealt with all the lows, and I know they are delighted for me now we have finally got our “high”. I couldn’t have done it without them.

I will continue to blog, moving from our journey to complete our family, to the both the good times and the hard times of being a mum raising two boys, so I hope you will all stay with me 🙂

Featured

A year older a year stronger… or so I thought

So it was this time a year ago I wrote by first blog on this site, timed with Baby Loss Awareness Week and the annual Wave of Light (https://muddledmummy.com/2018/10/07/i-feel-guilty-when-i-laugh/) . I had lost Isabella in very traumatic circumstances the month before on 25th September, having lost Max only five months previously on April 15th – and was very “broken” to say the least. I certainly couldn’t envisage a time that I would really enjoy life again, let alone contemplate making a new life.

So much has happened this year, both at work and at home, that it has flown by. It was unimaginable to me that a year on from lighting that first candle that we would be 31 weeks pregnant with a little boy (counting down only 7 weeks to go now before induction – the date has bow been booked!!). It was also unimaginable that Rebecca’s Room would have gone from an initial idea to actually being opened and in use (https://muddledmummy.com/2019/09/08/momentous-miraculous-moments-rebeccas-room-a-reality/). And I DEFINITELY didn’t realise that I would have the honour of being involved in the Secret Garden Charity Ball – all in aid of the Stillbirth and Neonatal Death Society (SANDS) who had funded the Forget-Me-Not suite in which I gave birth to Max.

I was first asked to join the committee late last year, by the wonderful Kat, and was introduced (via the wonders of Whatsapp) to the other lovely committee members – Lauren, Laura and Allison. It was very soon apparent how driven these ladies were for not only putting on an amazing event (which they had done twice already in 2017 and 2016), but also how much they cared about raising money for SANDS. I could only hope that I would be able to help out as much as I could.

It was daunting meeting them for the first time, as they had all known each other for a long time now, and I felt like a newbie at school walking into the pub the first time, but I shouldn’t have been nervous. They were all friendly and welcoming, with some sharing their stories of loss with me, that meant so much to be around other women that understood my pain. I had found a new tribe.

The months rolled by and I tried to help sourcing raffle prizes, securing two tables of lovely friends at the ball, and nearer the time selling as many raffle tickets as I could. They organised so many fantastic things, from light up SANDS letters to a three course dinner with DJs.  The date of the ball, last Saturday night, came around very quickly and I was asked to give a speech on the night. I thought all would be fine, my speech covered why I joined the committee, how amazing I thought the ladies were, logistics for the night and what everyone’s money would be going to – listing out some of the ways SANDS helps bereaved parents.

When I practiced it at home, it was fine – different story on the night though! I didn’t even make it to the second paragraph before I felt the tears coming. As soon as I mentioned losing my two beautiful souls the emotions overtook me and I ended up crying on stage in front of over one hundred people. I could blame tiredness, my hormones, nerves – but ultimately, I just think it’s all still too raw for me to be ok. Despite the CBT I am still having, every day I miss Max and Isabella, every day I think what if, and every day I still expect to loss this baby. It just all took centre stage – quite literally – on Saturday night. The next day I was looking through some baby loss awareness week posts on Instagram, and one of the hashtags this year is #itsoknottobeok, also in line with mental health awareness week – and I think I need to keep this in mind. I know some people will find it odd still feeling this devastated, and think it shouldn’t matter as much know as have another little one on the way, but I think ultimately only people who have been through it will understand that a piece of your puzzle will always be missing. But that is ok. How many have a complete puzzle anyway, there are always things people wish for…

Here are a few pictures from the night – we raised so much money for SANDS – an UNBELIEVABLE £5,300 and I am really proud of all of us. Bring on 2020! I would also like to thank my amazing tribe who came to the event to support me, I hope you all know how much I love you.

Finally, please remember to light a candle at 7pm tonight, and remember all those beautiful souls taken too soon.

image3
A new tribe

IMG_0613
My 20 year tribe

image1
I got my table forget-me-not seeds to plant

image2
The beautiful room

Featured

Momentous Miraculous Moments…Rebecca’s Room a Reality!

So we’ve actually done it… got to the supposedly magical 24 weeks (well actually will be 26 on Tuesday but it’s taken me a while to write this!)… when various sources state that your baby has a 50/50 chance of surviving if born at this gestation. It’s odd, as although if born this early the baby would be extremely premature and likely have a range of massive health problems, it was still an important milestone for us to hit. It is over double what we got to with Isabella, and seven weeks more than we got to with Max. I have extremely positive moments when I think about how far along we are now, but then extremely negative moments when I realised we still now have another twelve ish weeks to go before they will induce me at thirty eight weeks, and I still check for blood every single time I go to the toilet.

Anyway, back to the positive. Had a scan on Thursday and everything is looking normal at the moment! Saw my consultant and she’s happy with how things are going, agreement is to have another scan in four weeks and clinic appointment with her, but go and see my local midwives in a fortnights time to check blood pressure and urine. My consultant (Miss Hutt) is being so thorough that she has also booked in a gestational diabetes test for me in three weeks time, to “make sure we don’t have any nasty surprises”.

BUT the main reason for writing this blog, and it’s title, was the opening of the Rebecca Room this week! I honestly thought it would never happen, not because I didn’t have trust in the wonder woman that is Wendy Fuller, but just that it was so surreal that a room would be opened with my name at Royal Surrey County Hospital.

Mum and I went along on Thursday and met Wendy at Compton Ward reception then walked down to a side room, which had a big purple bow on it. In the vestibule area there is one Forget-Me-Not picture that Wendy and I chose, and another picture on the wall – which was actually the image we had on Max’s order of service back in May last year. Wendy had organised lots of lovely cake, and various people joined us in the room, some of the lovely EPU staff, Sisters who work on Compton ward, some of the great board members I went to speak to back in March.  I was truly touched to see them taking time in their day to come, and it was clear they all really cared. The room is painted in two different tones of purple, much more calming than the bright yellow door that had been there before!

Wendy then showed me the amazing work her and the team had done on the new information box that that the have on the ward – most importantly it includes a printed version of a new pathway of care when pregnant ladies come onto the ward, it documents EVERY step that staff should take, with a checklist of items that are needed to ensure that during a traumatic time ladies are treated sensitively thorough out. It also includes an “in memory” book I gave them for bereaved parents to write in, as well as the same memory boxes that are used in the Forget-Me-Not suite on the maternity ward. Wendy told me that staff from the Compton ward are also now doing shifts on the EPU to help their interactions with maternity patients. I did ask if they had anyone else lose a baby on the ward since me, and sadly there has been one lady, but Wendy said due to lessons learnt from my experience, her ordeal had been handled very differently, so it’s reassuring to again know that it has helped others, even if it still brings me to tears every time I think about it.

After a tour of the room, and chatting to various members of staff, I was invited out to cut the ribbon! There were lots more staff waiting outside, and it was heart warming to see them all coming along to see the opening of this very special room. When I cut the ribbon I was astounded to see a brass sign saying Rebecca’s Room – I genuinely thought it was just going to be referred to that in paperwork/by the staff, not for all to see! Of course this made me cry (and mum), but Wendy was on hand to give me a big hug. There was a photographer there, and afterwards I had a chat with someone in communications, so there will be a press release coming out soon that I will share with you all.

The room is brilliant, it will always be a sad time for the parents that use that room, but it certainly is a more tranquil setting, and is equipped to deal with things so much better now. I am in awe of Wendy (and her team) – her determination, her passion and her drive to get this done. It really does feel like a miracle. I can’t wait for Wendy to meet the little man, and I really feel I have a friend for life, she will always hold a special place in my heart. Ultimately, the world needs more Wendy’s!!!

 

 

 

Featured

Half Way… Half Hope?

Been a while since I’ve blogged, but still living day to day with this pregnancy, and set myself the goal of blogging again once we were twenty weeks – which was yesterday.  A milestone which had followed an absolutely horrendous week – physically, mentally and emotionally.

Let me explain. At ten weeks we had paid for a private test called “Harmony”, which looks at the chromosomal abnormalities a baby might have, it’s meant to be around 99% accurate, as opposed to the NHS blood screenings for these that is approx. 85% accurate. Everything came back clear at the time. Then when I had my combined NHS screening at twelve weeks, although the Nuchal Translucency measurement (to do with the amount of fluid around baby’s nuchal fold – high fluid could be a sign of Downs Syndrome) was normal, 1.5mm, my results came back as 1 in 40 for Downs, so there the blood test was showing something up. At the time, my consultant said not to worry as I had the results from the Harmony, which were far more accurate. Then four weeks later (about two weeks ago), she was looking through my file at a clinic with her, and said it wasn’t good enough that they had only screened on 8% of Fetal Cells in the Harmony test, the NHS like a minimum of 10% apparently. So she order the SAFE test (Harmony just by another name) to be done then and there. We waited an anxious seven days, and on Friday last week it came back with bad news – 1 in 127 risk for Downs.

We were in turmoil. My consultant was away for another two weeks so couldn’t discuss with her, and we were at a loss of what to do. We were offered an amniocentesis test – which basically means putting a very long needle into my uterus to take some of the amniotic fluid, to test the baby’s urine. This was a diagnostic test, that would tell us one way or another – great. But not great. It came with a risk of 1 in 100 chance of miscarriage, and given my history, it felt like my chances of miscarriage would probably be higher than that. My main thought being, what if we do this, and we accidentally kill a healthy baby, I would never forgive myself. But my head was also saying, I can’t spend the next twenty weeks wondering, it would affect my relationship with Matthew and Dylan – as would be too much pressure and distraction and not being able to focus on everyday life. I was also worried that the baby might be born incredibly unwell, perhaps with heart problems, and not survive birth and then I would have carried on pregnancy building up hope, to only then be devastated all over again. But all that being said, I don’t think we would have ever gone through with an abortion unless scans really did show a problem with the baby’s heart or brain which meant he would have no quality of life. I don’t think anyone really knows what they would do in this situation, until you are forced into it. So I hope nobody judges me that we even contemplated what we would do if he did have Downs, not unless you have been in my shoes.

On the Monday morning I went to see a specialist at the hospital, and she said in reality we had now had two “positive” tests for Downs, so in most cases they would strongly suggest the invasive test. She said it’s better to have it now, as it can bring on birth, if we left it later, then the baby could be born extremely prematurely, with severe health problems, so they normally say before 24 weeks or not until 34. I called Matthew and we decided to at least book at appointment the next day at St George’s in London, where we would have a detailed scan and then the test, but that we could always cancel once we had slept on it. Not that any sleep was possible.

The next day we agreed to drive to Tooting, knowing that we could pull out last minute. The staff there were fantastic, and I had the most detailed scan I have ever had, they even called into the room one of their main consultants in fetal medicine to do it. She said although the scan showed no physical problems, the only way to truly know was to do the test. We decided we couldn’t go through the next twenty weeks worrying about it, so went ahead. It was incredibly painful. When it was done, I went a bit dizzy so had to sit and wait for a while before we left. They also took some of my blood for a research project they were doing on the test, as I had had three different results from the previous blood tests, they thought it would be an interesting case to add to their research. Wasn’t ideal, but at same time, they had been so kind and so thorough that I didn’t have the heart to say no.

The next 48 hours were a bit of a blur, it was the “high risk” chance of miscarriage, so was ordered on strict bedrest. Luckily Matthew was able to work from home to do the nursery runs etc. – as I wanted to avoid lifting Dylan. Unfortunately, on Wednesday night I started feeling ill, very hot and headachy as well as pain when I went to the toilet. So, mum and dad had to rush round to look after Dylan whilst we drove to the hospital. We were there for four hours, well gone midnight, with more tests completed. There were infection markers in my urine and blood, which for me felt like it was the beginning of the end, as that’s what had happened in the previous two losses. They gave me some antibiotics and told me to come back if I got cramping/bleeding etc. Luckily, I didn’t, and started to feel better a couple of days later. Basically I spent an entire week in bed, in a heatwave, wondering when I was going to loss my baby again. I am very fortunate in that my boss told me to take all the time I needed and not to give work a second thought, so at least I didn’t have that to worry about on top.

On Thursday afternoon we got the results – everything was clear. We were delighted, but at the same time, I couldn’t help thinking, that’s only the next hurdle we have overcome, I am convinced there will be more.  I think my consultant will be surprised that we had the test, but sometimes I think you have to roll the dice, you have to have faith that you have had your cruelty in life, and it’s your turn for something good to happen.

On a positive note, I had a scan on Tuesday, and everything seems fine, but at the back of my head, I always think “for now”.

Here is our little man, it reminds me of the Rodin’s The Thinker statue… or should that be Bruce Forsyth?!

IMG_9695

As it stands, I am twenty weeks, with the plan of coming off the progesterone at 34 weeks and being induced or having a C-Section at 38 weeks – as the consultant does not want to risk my placenta making it all the way to forty weeks. They will also scan at 22, 26, 30, 34 and 38 weeks as a minimum. Each of these will be a milestone, as will 24 weeks, as this is the “viability” stage – when the baby could be born and potentially survive. So although I am hoping the next four weeks go quickly, I also want to make sure I am not wishing the time away, as I know it’s important to enjoy every minute with Dylan, as he is still my little miracle.

 

Featured

When is “enough” really enough?

So Thursday was the BIG day… the day I got to talk to the exec and non exec directors of the RSCH board and tell them the story of Max and Isabella. All of this was possible due to someone going above and beyond to try to give my own story a positive outcome, the Compton ward matron – Wendy. I didn’t ask for the meeting myself, she asked for me. She shared my first blog with various people, and is determined that my story won’t be repeated for any other mums to be coming to the Compton ward. Having someone prepared to go so far to make a difference for you is a very humbling experience.

Back to the meeting.. I was expecting maybe 4 or 5 people, turned out to be nearly 25- although I was counting through eyes filled with tears, I didn’t even get my first sentence out before I was being passed tissues and water. It looked to me like most of the board was there, including the CEO, Director of Finance, COO, Chief Nurse, Chair and Deputy Chair. The chair said that they had all received a link to my blog and many had read it – which took me aback, that people at this level had taken the time to.

Another lovely  lady Jacqui (who I think was Director of Midwifery and Divisional Head of Nursing for Women and Children), introduced me to the room and simply asked me to tell everyone what happened. I tried my best, but it was all out of chronological order, I wanted to get the main points across and then move to other bits I thought were important too, that I would get round to if I had time. I told them how I had gone in bleeding, and five days later, my beautiful little girl was born sleeping. I did notice a few people tearing up as I told them the details (male & female).. which made me feel bad, but also made me feel more confident that my story was hitting home.

Jacqui then asked me what they need to do differently, so I tried to list things:

  • Quicker access to drugs that a patients needs when just having given birth
  • Having the right equipment on the ward
  • Not shoving a form in someone’s face with funeral options two minutes after giving birth, which was worded horrendously 
  • Not saying “the pregnancy has come away”… but instead “your baby has been born sleeping”
  • Having the possibility to have a detailed scan in a proper until over a weekend
  • Not keeping the sleeping baby in the cupboard next to you for eight hours until someone knows where to take it
  • Having staff properly trained in how to dealing with mums who are miscarrying – suggesting that they each do a shift on the maternity ward, and a midwife visiting the pregnant lady on Compton ward at least once a day

And my ultimate point, the one I am really passionate about and memory of will be with me to my dying day, no woman should ever have to give birth on a ward behind a curtain.

When I had finished the Wendy talked about some of the improvements they had already made, or are making, on the ward to address my points. They have already bought a plug in light so no one can walk off with it! Having a proper gynae kit on the ward. Having the SANDS forms available to give grieving parents so they know extra help they can get. Investing in more people trained in specific baby loss bereavement counselling. They are addressing the form that will be used on the ward, and took into account the need to wait to give it to the patient. They are looking at the training package for staff to make sure they are better equipped  to deal with situations like mine. The BIG one was, having a side room that is dedicated to pregnant ladies that come in with complications pre 14 weeks (after which point they go to the maternity ward).

Slight diversion here…just before going into the meeting, Wendy and I talked about the room, and I was allowed to choose the paint colour! We had been emailing before as well, and they are using two images of forget me nots on the wall, one being very similar to the heart shaped forget me nots we used on Max’s order of service (I had sent her it as an example). I also gave Wendy an “in loving memory” book I had bought for the room, and the first entry was a note about Isabella, so that it might help other mums to write something.

img_8147.jpg
img_8148.jpg

The room was then asked if there were any questions for me. The FD said “are we doing enough?” , I said yes, then he asked again “really, are we really doing enough?”. I said it means so much to me that changes are already happening, and that I know finances in hospitals are ridiculously stretched, but that it is really really important that no one goes through this again, invest in the right training and infrastructure. He said cost shouldn’t be an issue, so will be interesting to see what happens over the coming months! But ultimately, in relation to the title of this blog, I do feel overwhelmed and proud of the changes they are making, it doesn’t take back anything that happened to me, but it will make it slightly less horrific for women that come in and loss a baby on that ward.

Another gentleman then asked if I would be interested in becoming a patient advocate at the hospital, I said yes of course – although at that point wasn’t sure what it would entail! With that I was thanked AGAIN for coming in, and I said I was very grateful for being invited in.

After the meeting Jacqui, Wendy and I went for a drink (hot chocolate, although I could have done with a gin!!). Jacqui explained that they are looking into a shared services scheme with two other hospitals to make sure mums to be can be scanned properly over the weekend. Jacqui also asked if I would like to come in next time SANDs visit the hospital to train, so I can tell my story to the Drs that are attending, which I of course would love to do. She also explained more about being a patient advocate, and we agreed, I should make sure I stick to women’s health, as this is where my passion lies.

So that was my Thursday. Once again, a long blog, but it felt like the end of a chapter. I am just not sure what my next chapter will be… all I know is I could do with it not being so sad.

Oh and one last thing.. they want to call it the Rebecca Room….

Featured

A Tribute to my Tribe…..

This year has been shit for me. That’s a fact, no one can argue with me on that. Losing one baby is tough, but losing two in such a short space of time is just effing unfair. My CBT counsellor said to me she didn’t want me to pin all hopes at the clock striking midnight on NYE and me feeling heaps better, because it’s no longer 2018 – the year I lost two beautiful babies, she said all I would think instead is “last year I lost…”. It’s a good point, I don’t know why I was kidding myself I would feel much better just because of a digit change in year.

I’ve been reflecting a lot on what I should be grateful for. And very near the top of the list is the group of amazing women I am lucky enough to call my best girl friends – which many women are now starting to refer to as their tribe.

My particular tribe are some of the strongest women I have ever encountered, and I want to talk about why they are so strong, many of them having faced true trauma. Most of them I met at college – but one I have had the fortune to be in my life since the day I was born. My sister and best friend. She is my rock, and has been through so much. She sadly suffered an ectopic pregnancy and lost one of her tubes shortly before Dylan was born. It must have been horrendous to see me heavily pregnant (I know how I feel seeing pregnant women now) – but she never stopped wanting to be near me, and was there in the hospital day two to meet Dylan. She now has a wonderful son and I know him and Dylan will grow up as close as brothers.

One of my tribe has battled cancer – and WON! She amazed me, and still does, with her positivity. She wrote blogs throughout her fight – https://bootybeastgreenwood.blogspot.com – which is what inspired me to blog about how I have felt these last few months. Her blogs are so powerful, so raw – I cry almost every time I read one – and if not sad tears, its happy tears that she tackled The Big C head on and bloody smashed it.

We both agree that writing about it is good for the soul, and also important so that people don’t feel alone. A few lovely female friends and colleagues who have sadly lost babies have messaged me and said that my blog has helped them – which truly means the world to me.

Another member of my tribe has had a recent cancer scare – and again tackled it, didn’t let her bring it down, and continued to be an amazing mum, a student and superstar at work (as well as having a hot new boyfriend) – I am in awe of her.

One final tribe member I often think about when trying to gather my strength, and remember my blessings, proved how strong she was several years ago. Her first son was born extremely prematurely, spending the first 100 days of his life in hospital. This must have been so harrowing, to bring a living baby into the world, but not instantly be able to hug him. My heart ached for her when it happened, and now I am a mum I am so amazed by how strong she was, how she kept positive and how she made sure her little man had the best care. And what I wonderful chap he has become, always so lovely to Dylan when we visit.

Here’s a few of my tribe…so fantastic that I have them on my wall to see everyday, and remind myself how lucky I am.

IMG_6630

I do not necessarily count myself as a feminist –  in fact love a door being held open for me (well actually, wouldn’t mind if the door opener was male or female!) – but I do believe women are stronger together. Stronger caring for each other, and not slating each other. So my advice to you is this:

See your tribe – however far apart you are, make it work, book catch ups in – there is no time like the present!
Support your tribe – sometimes one of your tribe might do something a bit silly, or maybe they are trying to achieve something – whichever it is, make sure you are there for them at the end of the phone and know that you have their back
Celebrate your tribe – when they have successes, don’t be envious, but give them a high-five (virtual if need be)

If you don’t have a tribe – find one! A tribe can start with two, so message me and we will go for coffee or wine, or both!!

That’s me over and out for 2018, will blog again in 2019 after I have had a lovely test involving a camera up my foo on the 14th January to hopefully give us some more coherent answers. Until then, look after yourselves, and your tribe!!!

Featured

This is my fight song….

So… at my work there is this theme at internal marketing conferences of “walk on songs”, basically what entrance music is played when people walk on stage to make their presentation. I’ve always wondered to myself what mine would be, after this year I decided my song is Rachel Platten – Fight Song and here’s why…

Last week was a real test of my bravery and “fight”… firstly we had Isabella’s funeral on Tuesday. People ask me how the funeral went, but there isn’t really much to say, other than it went as well as could be expected. I got some lovely pink flowers for her, which half way through the service suddenly made me think of a bouquet she may have carried as a bride or bridesmaid, but I didn’t want to just have a tiny plain white coffin which no brightness to it. It was a very short and simple service, Isabella didn’t take a single breath in this world, there were no speeches about memories of her, anecdotal stories etc. Just two poems, two songs and a few prayers. However simple it was, it was important for us to say goodbye. We will scatter her ashes tomorrow, in a special place for us, the same place where Max was laid to rest. It makes me happy that they will be together, and I am sure he is already looking after her in heaven, and they are both watching over their big brother.

In the spring I am going to plant some Isabella RoseLily flowers, to join Max’s forget-me-nots in the garden.

cropped-isabella1

On Wednesday I went to the hospital, to meet with the ward sister (Wendy) and the divisional head of nursing (Julia) to talk about what happened to me, and discuss ways in which they could change certain processes to make things a bit less traumatic for other pregnant couples. I must say from the start, they were both lovely and I really felt listened to. I also felt that my feelings of both anger and trauma were being validated, they both acknowledged what I went through – particularly giving birth behind a curtain on the ward – was horrific and made my experience harder to deal with than if I had been in a private room or in the special miscarriage suite. It was also interesting to find out that once you are 14 weeks you are put on the maternity ward, but before then hospital policy is to go onto Compton ward where I was (which is NOT a specific gynaecology ward).

They are now going to assign a side room to a pregnant person immediately as they come onto the ward. This room is going to be painted in a more soothing colour – I suggested purple (all the side rooms are currently white with a bright yellow door frame). They have also order a kit that has the right equipment should anything go wrong – including a torch so nurses won’t have to use their phones! They are going to have the SANDS information on hand, so that people can know what support is available, as well as more details on postmortem options for still borns. We also talked about how pregnant women should get a visit from a midwife once a day, who could bring a baby heart beat monitor or even a scan machine with them (as apparently there has to be special training to use the monitors and no one on the ward has done it). I did say I thought both times having to wait over the weekend to get a detailed scan in the unit was very hard (as they only open it Monday – Friday), and they acknowledged that.

One of the other memories I have is the cremation form being shoved in my face three minutes after giving birth, and how crassly it was worded. They are going to work with the hospital chaplain a revised form, and perhaps waiting a bit longer before giving to the parents. I also said that one of my lasting memories is the Drs telling me (and my husband on the phone), that the “pregnancy had come away”. The pregnancy hadn’t simply “come way” – my baby girl had been born sleeping, so I hope some of the Drs might work on their delivery of bad news!

Neither of the ladies knew what a ALICE bereavement appointment was – presumably as if you are less than 14 weeks pregnant and on that ward, then you aren’t offered one (its an appointment with a consultant to look and test results and come up with a plan for future pregnancies). But I said I think this needs to be situational, as what if someone gives birth to five sleeping babies, all before 14 weeks, does this mean they don’t ever get the opportunity to ask why and have a plan for the future? They agreed that it should be on a case by case basis (I hope with all my heart they stick to this).

We spoke about how long Isabella was left in the room with us in her special knitted cuddle crib (over 9 hours), but they explained a consultant has to come to take her away, and the room with us was the safest place – although I do think they should have pushed for a consultant to come quicker than that!! They also said my husband should have got a phone call from recovery with an update (instead of waiting 3.5 hours with no news), but that definitely didn’t happen. Unfortunately the pharmacy won’t allow them to keep certain drugs on the ward (if they had the right drugs maybe my placenta would have come out quicker and we wouldn’t have had to have waited such a long time for it to come out – when Isabella was still attached…), but I guess certain policies will be harder to change.

They have said they will send me their new care plan, and have invited me back in the New Year to see what changes they have implemented. I know not ever hospital would take this much interest in improving, and in that sense I feel lucky to be dealing with the Royal Surrey – although no one would describe me as lucky after this year. It just brings me some tiny bit of happiness to think it wasn’t all in vain, changes will be made and if anyone else loses a baby on that ward, the processes and environment will be better for them.  I am also going to take in an “in lovely memory” book for them, with the first entry being about Isabella, so it can be given to parents who lose babies on the ward, to write in their sleeping babies names and a goodbye to them.

So to finish with some lyrics from my walk on song…its about having “fight”.. this week I fought for other parents, and it gave me clarity. My “match” (my opinions) might not make an “explosion” at the hospital, but it will effect change and my voice will be heard. My friends and family are always asking how I am feeling (which is very lovely of them), and I tell them I really am OK as I could be under the circumstances, they look sad for me, but I think last week I’ve “proved I’m alright” and starting “right now, I will be strong… I’ve still got a lot of fight left in me”.

Footnote: just heard from the hospital, my first blog (about what happened) is being shared with the staff on the ward so they understand from a first hand perspective!!

il_570xN.801521382_9ra0.jpg

 

 

 

Featured

I feel guilty when I laugh…

So… the annual #waveoflight is on the 15th October at 7pm, as part of Baby Loss Awareness week (#BLAW2018). Any other year and this united remembrance of lost babies would have passed me by. Little did I know when I got a positive pregnancy test in January, that I too would be lighting a candle this year, remembering not ONE but TWO of my babies – one boy and one girl – that were born sleeping this year, only 5 months apart.

This isn’t going to be a pity me post, but it’s my story, and I want to tell it. It also won’t be the “best practice” length of 500 words… no one can describe losing two babies in just 500 words. I quite understand if no one reads to the end, in fact I highly doubt people will, but it has been a cathartic exercise for me, so perhaps just bear with.

So here is how it happened…in April we were delighted to be pregnant again, so pleased to be giving our lovely boy a sibling. We had the harmony tests done at 10 weeks, and all the syndrome tests came back as 1 in 10,000 (it’s a private test that is more accurate than the NHS, but we thought it was worth the money to make sure we knew early on that everything was ok, having had quite a troubled first pregnancy) – and we were also told we were having a boy – as they can test the DNA in my blood. Our 12 week scan went well, and we told all our friends and family. We were due to have a 16.5 week scan on Monday 16th April (the Drs wanted to check our sons kidneys, as at 20 weeks when I was pregnant with my first son they discovered he had a problem with his kidneys). Unfortunately, a week before this I became ill and started bleeding. Initially I got sent to Basingstoke hospital, had a few checks, but was sent home, the presumption being it was just a bit of spotting. Sadly I continued to bleed all week, and after my midwives advice drove myself to RSCH A&E on the Thursday. My bloods showed I was fighting an infection, but again bedside scans and checks said everything was ok with our baby. My birthday was on the Saturday, and I woke up with horrendous bleeding, thinking then that our boy was still leaving us – and was just taking time to go. Again checks were done, and I was sent home so I could go for a birthday meal with my husband and son, with the view to coming back for a detailed scan on the Monday.

I went home feeling hopeful, I was feeling well enough apart from the bleeding, and the hospital were confident that the antibiotics were working. However, the following morning my waters broke. We naively went to the hospital not realising this meant the pregnancy was all but over. I was taken into a small side room, to have a bedside scan, again believing it would be ok, my husband was parking car and getting me a drink. When they scanned all my waters had gone, but the babies heartbeat was still beating – you could see it and hear it. My husband came in the room, and I will never forget the look on his face when they broke the news, to this day it’s etched into my memory. They then told me that I would be taken through to the a special “delivery suite” called the Forget-Me-Not room – I couldn’t comprehend this, I had never realised that I would now have to give birth to my son, I thought there would just be some sort of operation. At one point they even said he might be born alive for a few seconds, this was terrifying, but for some stupid reason gave me hope.

It was not that simple though…as his heart was still beating, we had to wait for it to stop before they were able to induce me. They said in VERY rare cases waters where only a little water had been lost, it can build up again, but I had all of my waters, so there really was no hope. We then had to wait an agonising 10 hours for his heart to stop beating, which included a scan and use of a doppler, and being told if my infection levels continued to rise, we might have to abort the pregnancy. At 4pm it started raining heavily, and I feel strongly that’s when he left us. It wasn’t until around 9:30pm that a Dr came to scan me, and we saw no heart beating on the scan. We then had to wait again for a second Dr to confirm this – cruelly the Dr was the same one that had helped me deliver my son two years previously.

Then the induction started, one pill every four hours. They told me to sleep in between, but I just lay in the dark room, with my husband beside me, trying to absorb what was happening. Three lots of pills later, at 9am the following morning, 24 hours after my waters broke, the contractions started. With the help of gas and air, Max was born at 10am, weighing 113 grams. The midwife who handled it all, Eve, was phenomenal – I don’t know how someone in that position copes so well. We saw him to say goodbye, and had him blessed by a priest. We decided against an autopsy, just feeling he was too little and had been through too much to be sent off and tested. I had many blood tests done, but they never provided any answers.

To say we were devastated doesn’t even come close. There are no words to describe how you feel. I had started to show, but felt so empty and such a failure. I couldn’t believe we then had to plan our babies funeral. Three weeks later we were at Guildford crematorium, we had both chosen a song and a poem, and attended on our own, it was a grieve we wanted to deal with in private. We spread his ashes somewhere special to us, and I added to the memory box the hospital gave us (which included a matching teddy and hat that he had in the coffin with him), with the various scan photos and the funeral order of service. In Max’s honour I completed the Couch to 5k Challenge in the summer, and my wonderfully generous friends and family donated a total of £680 for the SANDS charity – who had funded the suite where I had given birth. It was good to focus on this at the time, but in hindsight I think I should have focussed more on how I felt about losing him.

We both only took about a week off work – looking back now that was far too short. We just tried to keep ourselves busy and await the ALICE bereavement appointment at the hospital, which might have given us answers. It didn’t, more tests and scans, and still nothing. It was “just one of those things”.. and “no reason why we shouldn’t try again”.

In July we had a family holiday and decided to try again, I really wanted to be pregnant by the time the baby I had lost was due. To my amazement we got pregnant again straight away, baby was due on the 4th April – so 11 days before the year anniversary of losing our son. I kept telling myself this time would be different, but didn’t enjoy a single day of the pregnancy, continuously paranoid. I was making sure I was keep healthy, no caffeine, plenty of exercise, cutting out all danger foods etc. I had 7 week scan, and all was well – baby was in the right place and had a heart beat. Again we had the harmony test, again all the results were fine, and we were over the moon to be having a girl.

On Thursday 20th September we had a successful 12 week scan, then at 8:30am the following morning I started bleeding. In what felt like de-ja-vu, I drove myself to A&E and sat sobbing on my own until someone came to see me. Tests were then done again, infection levels were up, but bedside scan showed our baby girl was fine. I asked to stay the night, just in case, and the bleeding suddenly increased at about 3am. Over the following days the bleeding continued and infection levels rose. I wasn’t in pain and had no temperature etc, so various Drs told me to keep positive. Then on the Monday morning I called my husband telling him to come straight to the ward, as I was having contractions. However, they stopped and we prayed it was a false alarm. We had a detailed scan and saw our baby girl wriggling around – they told us this was great, and I hoped it was, but still felt that we were losing her, and it was a simply a matter of time. I was just feeling the same way I was when we lost Max.

My husband went home, to make sure our son was looked after, me reassuring him that I was fine, and I would see him the following day. Then at 8am the following morning my contractions started again, this time stronger and more painful. This was my third labour and I knew what was happening. A lovely lady from the bed opposite came to help me – we had grown close over the last five days, as the Drs were on their rounds and I was waiting to be seen. The contractions quickly got stronger and were every two minutes. I knew there was no point calling my husband to join me, my beautiful baby girl was coming. The Drs arrived and told me to “hop up on the bed” so they could check what was happening. I shouted that I was giving birth, but I know by the look on their faces they didn’t believe me – it was just by chance they were there – as two minutes later I gave birth to my sleeping little girl that I had hoped for and dreamed of. She arrived two days before the son we lost in April was due.

There was then chaos – this had never happened on this ward (hospital policy put me on a ward that was gynaecology and gastro, as I was too early in the pregnancy to go to the maternity ward – the hospital had recently lost its dedicated gynae ward ), they didn’t have the right equipment, or drugs, even the nurses had to use their phone lights to help as I was examined down below. Luckily, there was an amazing nurse called Laura, who had endured a miscarriage, and held my hand through out, she was my absolute rock. I never thought I would give birth behind a curtain, with five other sick women listening to my screams, whilst they recovered from various illnesses. A form was given to me two minutes after giving birth, signing that I would organised my own funeral and I wanted an autopsy. I made one of the Drs call my husband, then my sister, and tell them what had happened. All I wanted was my husband to come and hold me.

We were moved to a private room, my little girl still lying on the bed, whilst they waited for me to pass the placenta. My husband arrived in lightning speed, and I explained to him what happened. Again, we were both beyond devastated, again I felt empty, and again I felt like my world had fallen apart. For the second time in five months we met a sleeping baby,  our Isabella, and had her blessed by a priest. She was so little, our beautiful girl that would have been a wonderful sister for my son.

This time I had a general anaesthetic, for what is termed a D&C, to make sure I didn’t become iller. This was the first time I had a general, and woke up thinking I had dreamt the whole nightmare, I couldn’t – and still can’t – comprehend that we have lost two beautiful souls this year.  We are yet again awaiting results and planning a cremation. This time I need some more time to heal – physically, emotionally and mentally, luckily my boss has been amazing, very supportive and told me to take all the time I need. And I have no idea what the future holds. I long for a sibling for our boy, I know how much love he – and us – have to give, but know this is now a very very unlikely. I don’t understand how people endure multiple miscarriages, one woman in a forum I now belong to having lost 16 little angels before she had a healthy baby.

On the 31st October, after a request from the ward Matron, I am going to have a meeting with the divisional head of nursing, to discuss what they should include on the ward to make this horrific experience even remotely bearable for other parents – setting up a special room, like they have in the delivery suite. I know this was effect me, especially going back to the ward where it all happened, but if there is anything positive I can get from my experience, and help other parents to be, then that is something I want to deal with. I must say the staff were amazing both times, so much care and did all they could. However, the hospital policy on where to put first trimester mums, and the care they receive, needs to be reviewed from further up the hospital chains I really hope I can effect some change.

Today is also #worldmentalhealthday, and I have now had my first ever counselling session, to try and wrap my head and heart around what I am feeling, an another reason I wanted to publish this blog this poignant week. I will see how this counselling goes, and maybe focus on it in my next blog.

Two weeks on, I still feel guilty when I laugh, or when I forgot what has happened this year – I really can’t wait for 2018 to be over. There will forever be two of my puzzle pieces missing, but Max and Isabella will live in my heart and mind until they day I die. I try to remain positive and happy for friends who are expecting, but each time a new one pregnancy is announced or a new baby is born, it stabs at my fractured heart a little. I will always feel that we aren’t complete as a family. I will always never be able to stay long in the spare room that was meant to be a nursery this year. I will always feel that I have let my husband down, losing two of his beautiful children.

I would like to finish by saying without the support of my husband, family and certain friends (you know who you are!), this would have been so much harder, I am so grateful to have them around me.

Finally, if you see on a friends Facebook a picture of a little light burning on the 15th October, send them a virtual hug, their pain is indescribable, and will sadly last forever.

IMG_4949

Cardio and cake…battling the Becky bulge!

So it’s been a longggggggg since my last blog, and I really want to get it started up again this year. It will NOT be about baby loss, I need to leave that behind, even though it’s still with me a lot of the time. My first one of 2022, therefore, is going to be about working towards a healthy body. 

As some of you know, I have been on a health kick for the last nine months – I am deliberately not using the word “diet”, as it’s so much more than that. I was inspired to start by my amazing sister Sarah King. She absolutely smashed weight loss in 2021 and seeing how well she was doing, I decided enough was enough and in May started my own journey. Since getting pregnant with Dylan (who I can’t believe is soon to be six!), I had put on FOUR stone. A lot of that was pregnancy weight I never lost, weight added through emotionally eating after grief, and lockdown pile on! I knew I could do it, as in 2013 I lost 4.5 stone, going from a size 20 to a size 12/14 – for a giggle here is an article for that Match.Com paid for when they found out Matt and I were now married (having met on there in 2010), but the article was more written as a weight loss story. Some of the comments are hilarious, but I got a heap of Amazon vouchers from Match for it so was worth it! 

https://www.dailymail.co.uk/femail/article-2749416/amp/I-fell-love-ballooned-size-20-Woman-piled-weight-meeting-dream-man-online-sheds-FOUR-STONE-time-wedding-day.html

I started using an app for tracking calories, called Lose It, that Sarah recommended. It’s really simple to track what you eat during the day, set yourself a calorie limit and it links to Apple Watch – so the more exercise I did the more calories I was allowed during the day. I did have to keep reminding myself that the calorie amount was a LIMIT NOT A TARGET! So in the beginning, I tried to keep well below it. In theory, the more weight you lose the app would lower the calorie amount you are allocated per day, however, I haven’t changed mine, just prefer to keep to a certain amount of food and gradually try to up the intensity of my exercise. If I used the app’s suggestion I just know I would have ended up miserable, as still really like and NEED the occasional treats. 

I have never been a big drinker so it wasn’t like I would lose a lot of weight by cutting out alcohol. My problem was anything beginning with C – chocolate, cake, crisps, crumpets, and worst of all cheese! So had to swap things out, now having cereal bars as snacks, baked crisps that were lower in calories for a treat, cereal every morning instead of thick white delicious toast, and low-fat cheese – and a LOT less of it and less often too! Don’t get me wrong you will still see me munching on cheese, chips, cake, and chocolate, but I reward myself with those if I have seen a loss at the scales OR if I have eaten a low-calorie lunch and exercised that day. 

It wasn’t all about calorie intake though. I needed to improve my fitness, Dylan is a VERY active child and I felt like I was really struggling to keep up with him (I can’t still now as he can run 2K in just over 10.5 minutes!). I had always trained with Jane Booth, and we spoke about my goals and she came up with a weekly plan for me to do in the gym, which as my fitness levels rose, got more intense – no slacking with Jane!! Jane is fantastic, as she appreciates sometimes when I was super tired or had period pain that meant I wasn’t up for certain things, but at the same time always pushed me to be fitter and stronger. As well as these sessions Jane convinced me to sign up for a walk climbing fitness class at the sports center – think 60 seconds climbing a wall the 60 seconds of squats, etc – it’s awesome and I really hope after reading this blog someone signs up to the next term!!

Who loves my gold leggings?!

My first target was losing 2 stone by a wedding we were attending in October, which actually I worked really hard for and managed to lose 2.5, so then changed target to 3.5 by end of the year – which again I achieved. Then ultimate was four stone, which I hit this morning! Actually, it was 56.5lbs/25.8KG in 9 months. There’s an old saying about pregnancy “nine months to bake, nine months to shake”… technically I did it in 9 months, there was just a five-ish-year gap before I started trying!!

Here are my before and after shots! (thanks to Jane again for the photoshoot in the gym today!)

I am super super pleased that the hard work has paid off. I am no way near as toned as I was for the wedding, that will take more time, but I am now at a weight I feel I can maintain through exercising well, making smart food choices BUT (at this is the most important part) – I can still have a takeaway or meal out with friends and not feel guilty about it! 

That’s it for now, I hope this blog wasn’t preachy or came across as smug in any way. I often share posts about how proud I am of my children, but just this once, I wanted to share how proud I am of myself 🙂

I hope some of you will join me climbing or bouncing soon!!

Xoxo